The New York times has released a damning report on how patients with ME/CFS have been given ineffective treatment that can actually make sufferers worse.
“Many major medical organizations cite two treatments: psychotherapy and a steady increase in exercise. There’s just one problem. The main study that has been cited as proof that patients can recover with those treatments overstated some of its results. In reality, the claim that patients can recover from these treatments is not justified by the data.”
“New re-analysis by an academic researcher and patients showed, the promise of recovery using the two treatments appeared to be an illusion. When the study’s findings were first published, patients and some scientists noted a stunning problem: The investigators had weakened their outcome measures from their trial protocol so much that participants could actually deteriorate on physical function and still qualify as “recovered.” Thirteen percent entered the trial already having met the definition of “recovered” on that measure.” Says the New York Times.
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