Frequently asked questions about FND ME/CFS

Why me?

People don’t cause their disease, they are born with it. Getting ME/CFS is triggered by viral infections and physical trauma – things that are normally beyond our control.

Can I donate blood if I am diagnosed with ME/CFS/PVFS?

NHS Blood and Transplant have banned donating blood if diagnosed with ME/CFS/PVRS.

This brings the ME blood donation policy in line with other relapsing conditions or neurological conditions of unknown or uncertain origin, such as multiple sclerosis and Parkinson’s disease.

Can FND/ME be caused by stress?

Stress can weaken the immune system making it more susceptible to viral infections but stress cannot cause diseases.

Is FND/ME a psychiatric disorder?

FND/ME are not psychiatric disorders. The latest scientific technology have identified biological markers providing concrete evidence that these diseases are not psychological or psychobiosocial.

Can FND/ME be cured with exercise and cognitive behavioural therapy (CBT)?

A disease cannot be cured by CBT and exercise. Faulty thoughts do not cause diseases, they are caused by pathogens.

Fixing a patient’s sickness beliefs cannot reduce the physiological effect of the disease.

Specialist ME/CFS Doctor Myhill states “we now have an objective test of chronic fatigue syndrome which clearly shows this illness has a physical basis. This test clearly shows that cognitive behaviour therapy, graded exercise and anti-depressants are irrelevant in addressing the root cause of this illness.”

Is ME/CFS just being tired?

Lower ATP production affects every system in the body and can lead to exhaustion however  nearly all patients experience cognitive impairment, sleep disruption, muscle and joint pain, all of which are consistent with mitochondrial and neurological dysfunction.

Can ME/CFS be treated?

All illnesses can be treated but in the case of illnesses that are chronic (long term/no cure) – the treatment consists of managing symptoms and slowing progression.

Is ME/CFS a rare disease?

ME is not rare and can affect men, women and children of all ages and backgrounds. It is estimated that there are over 250,000 people in the UK with ME: nearly two thirds of them are women. Most people develop the illness between their early twenties and mid-forties.

Is there a cure for FND/ME?

There is currently no cure for ME/FND but new advances and treatments are being found each year.